Most of you know our little girl is deaf.
She wasn’t born deaf.
We think around age 16 months, she began to develop a progressive loss that occurred over an unknown period of time.
In April of 2009 she was diagnosed with Enlarged Vestibular Aqueduct Syndrome.
This caused a severe to profound loss in her right ear and a moderate to severe loss in her left ear.
She’s been wearing very powerful, digital hearing aids since her diagnosis.
And to date, this hearing loss has remained stable.
Most kids with EVAS eventually lose all hearing and we expect this will happen with Ashlyn.
She turns 4 next month.
And honestly, we’ve hit a crossroads.
Due to the nature of her hearing loss, treatment has been tricky. Always borderline.
We did not want to rush to any decisions.
We know that once she’s implanted, she loses ALL of what little natural residual hearing that she has.
We also realize that with speech and language development, time is of the essence.
And we’ve prayerfully considered each step in her education and treatment.
We recognize that in the deaf community, this is a HUGE deal.
There is great controversy.
It is a very emotional issue. Understandably.
We want to be sensitive. And struggle with what could be viewed as us selfishly removing her from that community.
Or ever making her feel like there was something “wrong” with her that we had to correct.
On the other hand, we struggle with withholding amazing technology that will likely make life easier for her.
We’re not trying to “fix” a problem. We do not think there is anything “wrong” with her.
We think God made her beautiful and perfect and the way He intended her to be.
And just like I wear glasses and contacts to help my eyesight,
Ashlyn will wear Cochlear Implants to replicate hearing better than her current hearing aids can amplify it.
She has her initial screening at U.C. San Francisco at the end of this month.
Please be in prayer for us during this process.
We are excited and anxious. And confident that this is what’s best for our daughter and our family.
And you’ll probably be “hearing” lots about it…